Methodological issues for cross-cultural research

Articles

Stǻhl E, Postma DS, Juniper EF, Svensson K, Mear I, Lofdahl CG. Health-related quality of life in asthma studies. Can we combine data from different countries? Pulm Pharmacol Ther. 2003;16(1):53-9.

Mear I. Difficulties of international clinical trials: cultural adaptation of Quality of Life questionnaires. In Qualité de vie liée à l'état de santé: critère d'évaluation. Edited by Chassany O, Caulin C. - Collection Recherche clinique & Décision Thérapeutique. Springer, Paris © 2002:55-62.

Niero M, Martin M, Finger T, Lucas R, Mear I, Wild D, Glauda L, Patrick DL. A new approach to multicultural item generation in the development of two obesity-specific measures: the Obesity and Weight Loss Quality of Life (OWLQOL) Questionnaire and the Weight-Related Symptom Measure (WRSM). Clinical Therapeutics. 2002;24(4):690-700.

Conway K, Mear I, Acquadro C for the ERIQA Group. An attempt to develop minimal requirements for the 1st step of cross-cultural adaptation of patient reported outcomes (PROs) measures. Quality of Life Newsletter. 2001:27(July-Dec):6.

Acquadro C, Jambon B, Ellis D, Marquis P. Language and translations issues. In Quality of Life and Pharmacoeconomics in clinical trials. - Second edition, chapter 63, edited by B. Spilker. Lippincott-Raven Publishers, Philadelphia © 1995.

Acquadro C. Mise au point d'une échelle qualité de vie: aspects linguistiques. Le Courrier de l'Evaluation en Santé. 1995;7:20 -22.

Workshops

Conway K, Marquis P, Mear I. Cross-cultural research and quality of life.
Presented at 5th annual conference of the International Society for QoL (ISOQOL), Baltimore, USA, November 1998.

Patrick P, Martin M, Conway K. Cross-cultural perspectives in quality of life research Mapi Research Institute's training session, Paris, France, September 1998.

Oral presentations

Nadjar A, Mear I. Development of a checklist to assess the quality of translations of PRO instruments. Presented at the 16th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), New Orleans, USA, October 2009.

Conway K, Donald P. Translatability Assessment. Presented at the International Conference on Survey Methods in Multinational, Multiregional and Multicultural Contexts (3MC), Berlin, Germany, June 2008.

Conway K, Mear I, Rowbotham J. Integration of international input into instrument design: "Translatability Assessment". Quality of Life Research. 2004;13:1495. Presented at the 11th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), Hong Kong, October 2004.

Mear I. Aspects of Linguistic Validation Methodology. Presented at the 10th Annual Conference of the International Society for Quality of Life Research, Prague, Czech Republic, November 2003 during the Symposium “Challenges in Translation Methodology: comparing approaches and a discussion of good practices”.

Acquadro C. for the ERIQA Group. EMEA/ERIQA Guidelines for Translation and Cultural Adaptation. Presented at 6th Annual European Congress of the International Society for Pharmacoeconomics and Outcomes Research, Barcelona, Spain, November 2003 during the Quality of Life Special Interest Group forum “Translation and Cultural Adaptation: is it time for a harmonized approach to Linguistic Validation?”.

Conway K, Mear I, Acquadro C. Literature Review of guidelines for cross-cultural adaptation of HRQL measures: updated results. Value in Health. 2002;5(6):459. Presented at the 5th Annual European Congress of the International Society for Pharmacoeconomics and Outcomes Research, Rotterdam, The Netherlands, November 2002.

Conway K, Acquadro C, Mear I, Marquis P. Integration of international input into instrument design. Quality of Life Research. 1997;6(7-8):635. Presented at 4th Annual Conference of the International Society for QoL (ISOQOL), Vienna, Austria, November 1997.

Conway K, Marquis P, Mear I. Integration of translation issues into the design of HRQOL measures for use in international clinical trials. Journal d'Economie Médicale. 1996;Oct (Hors série):18. Meeting on health status and quality of life: conceptual, measurement and policy issues, Paris, France, October 1996.


Poster

 Vasarri S, Conway K, Rizzo S, Barnes N, Benmedjahed K, Berdeaux G. Eye Surgery Patient Impact Questionnaire / Development of a Version for International Use. Presented at the 16th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), New Orleans, USA, October 2009.

 Gil Campos I, Bonnet P, Von Mackensen S. Linguistic Validation of the HAEMO-QoL and HAEM-A-QoL for Use in International Studies. Presented at the 16th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), New Orleans, USA, October 2009.

 Mear I, Nadjar A, Acquadro C. Development of a checklist to assess the quality of translations of PRO instruments. Presented at the 14th Annual International Meeting of the ISPOR, Orlando, USA, May 2009.

 Lefrançois C, Bowers B, Williams B. W. J, Rush A. J. International investigation of depression based on the Structured Interview Guide for the Hamilton Depression rating Scale (SIGH-D) and the Inventory of Depressive Symptomatology (IDS-C). Presented at the 11th Annual European Meeting of the ISPOR, Athens, Greece, November 2008.

 Salmassi L, Kaschinski D. Use of an Electronic DIARY in 55 countries: what are the challenges? Presented at the 11th Annual European Meeting of the ISPOR, Athens, Greece, November 2008.

 Boucher F, D’Uva F, Garfield M, Van der Molen T. An International Investigation into the Health Status of COPD sufferers. Presented at the European Respiratory Society Annual Congress (ERS), Berlin, Germany, October 2008.

 Jargot A, Muller S, Mahler D, Donald A. International investigation into the impact of dyspnea on activities of daily living. Presented at the European Respiratory Society Annual Congress (ERS), Berlin, Germany, October 2008.

 Conway K, Piault E, Kopp Z, Abrams P, Brubaker L. Patient Satisfaction: International Development, Translatability Assessment and Linguistic Validation of the OAB-S, An Overactive Bladder Treatment Satisfaction Questionnaire. Presented at the 8th Annual European Meeting of the ISPOR, Florence, Italy, November 2005.

Acquadro C, Mear I - for Subgroup 1 of the TCA SIG. Review of the activities of Translation and Cultural Adaptation Special Interest Group (TCA SIG) Subgroup 1: Translation Difficulties. Quality of Life Research. 2005;14(9):2104.
Presented at the 12th Annual Conference of the International Society for Quality of Life Research (ISOQOL), San Francisco, USA, October 2005 and at the 8th Annual European Meeting of the ISPOR, Florence, Italy, November 2005.

Conway K, Mear I, Acquadro C, Rowbotham J. Translatability Assessment: a new approach to international questionnaire development. Presented at the 10th Annual International Meeting of the ISPOR, Washington DC, May 2005

 Conway K, Mear I, Acquadro C. Recommendations to the European Regulators for the Cultural Adaptation of Health-Related Quality of Life Measures. Presented at the 6th Annual European Congress of the ISPOR, Barcelona, Spain, November 2003.

Lobo Luppi L, Conway K, Mear I, Martin M, Ware J, for the IQOD Working Group. Benefits of Translatability Assessment to enhance the coherence of data in international studies – The IQOD Experience. Presented at the 6th Annual European Congress of the ISPOR, Barcelona , Spain , November 2003.

 Conway K, Mear I. Translatability Assessment: international review in instrument development . Quality of Life Research. 2002;11(7):656. Presented at the 9th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Orlando, USA, November 2002.

Bailey A, Martin ML, Wirkala KR, Bitiukova A, Mear I. US Spanish translation guidelines: a five year update . Quality of Life Research. 2002;11(7):699. Presented at the 9th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Orlando, USA, November 2002.

Conway K, Mear I. Integration of international input into instrument design: translatability assessment. Value in Health. 2002;5(3):223. Presented at the 7th International meeting of the ISPOR, Arlington, USA, May 2002.

Conway K, Mear I. Literature review of guidelines for cross-cultural adaptation of HRQL measures: updated results. Value in Health. 2002;5(3):222. Presented at the I7th International meeting of the ISPOR, Arlington, USA, May 2002.

Conway K, Mear I, Acquadro C. Proposed guidelines for cross-cultural adaptation HRQL measures: a literature review. Presented at the 9th Annual Symposium for Quality of Life Evaluation (DIA), Hilton Head, USA, March 2002.

Conway K, Mear I, Acquadro C for the ERIQA Group. Proposed guidelines for the 1st step of cross-cultural adaptation of patient reported outcomes (PROs) Measures. Quality of Life Research. 2001;10(3):287. Presented at the 8th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Amsterdam, The Netherlands, November 2001.

Girod I, Keininger DL, de la Loge C, Hunter M. Methodological issues in evaluating conceptual equivalence: applications of the Women's Health Questionnaire. Value in Health. 2000;3(5):342. Presented at the 3rd annual European meeting, International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Antwerp, Belgium, November 2000.

Girod I, Keininger DL, de la Loge C, Hunter M. Methodological issues in evaluating conceptual equivalence: applications of the Women's Health Questionnaire. Quality of Life Research. 2000; 9(3):25. Presented at the 7th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Vancouver, Canada, October 2000.